Patient empowerment doesnít just mean finding information and handing it out. It also means showing patients where to turn for relevant clinical findings. Even on the policy circuit, itís useful to have quick access to sources of accurate, in-depth, relevant data.

For many patients, a customized list of URLs is the best way to learn about diseases, clinical trial options, and other online information. Professional analysis of these sources gives patients a package to share with doctors and work collaboratively toward optimal care.

Still, a list of helpful sites is a good place for patients to start looking at a newly-diagnosed condition and the first-line sources for leading edge care. This is that list.

Clinical Information

National Institutes of Health: nih.gov

NIH listing of clinical trials: clinicaltrials.gov

PubMed research tools: www.ncbi.nlm.nih.gov/pubmed

National Organization for Rare Diseases: nord.org

Basic clinical disease information: webmd.com

Cancer treatment options and patient support: acs.org

Policy Information

Kaiser Family Foundation kff.org

kaiserhealthnetwork.org

US Agency for Healthcare Research and Quality: ahrq.gov

Pharmaceutical Information

Medicare Part D outpatient drug coverage: medicare.gov

Pharmaceutical clinical trials: fda.gov

Drug Side Effects: fda.gov/medwatch

Coverage and Reimbursement Information

Financial aid for drug costs: Partnership for Prescription Assistance: pharma.org/ppa

Medicare information for patients and others: 1-800-MEDICARE